Intresseorganisationer
Projektets/aktivitetens namn:
Phase II Dissemination of materials and Psoriatic Arthritis awareness: Good Care ProjectTidplan/datum:
Startdatum: 2024-06-15Slutdatum: 2024-12-31
Läkemedelsföretag:
UCB Pharma AB (ansvarar för innehållet i denna text)Samarbetspartner:
IFPA - International Federation of Psoriasis AssociationsProjektbeskrivning:
IFPA has developed resources from the first phase of the project to increase awareness of living with psoriatic arthritis, as well as the measurement and treatment targets. These materials were co-created by IFPA and global representatives of national members and key opinion leaders (patients and doctors). Psoriatic disease associations, thought leaders, and people living with psoriatic disease from more than 70 countries were able to convene and learn about the project at the IFPA Forum Asia. Furthermore, materials were launched at the EULAR Conference to reach Health Care Professionals. IFPA gathered feedback about the materials developed and the unmet needs and suggested improvements are included in phase two of the project. Phase II of the project involves an increase in disseminating the materials developed n 2022 and 2023. IFPA sees potential in supporting the members in the uptake and distribution of the materials in their countries. One of the actions to reach this goal is to lead campaign days in 2024. Some of the resources including social media messages, educational videos with patient representatives and medical doctors, articles highlighting treat to target latest guidelines, patient checklist need to be revised and organized on the dedicated IFPA project website. Materials must be easy to access and available in more languages. The project built a larger network of professional organizations, internal IFPA members and external ambassadors. For the next phase, we aim to increase the collaboration with professional organizations and leaders to further increase the reach of resources and raise awareness.Ekonomi – Belopp i SEK:
544 820Ekonomi – Beskrivning:
COST EUR PROJECT MANAGEMENT 5.000 CONTENT DEVELOPMENT INCLUDING CAMPAIGN MATERIALS AND TOOLKIT UPDATES 11.000 COMMUNICATION & MARKETING 9.000 PODCAST 2.600 CONFERENCE ATTENDANCE, INCLUDING PRINTED MATERIALS AND LIVE PODCAST RECORDING 10.000 TRANSLATIONS 11.000 SUMMARY 48.600 EUR Request: IFPA is seeking funding for the Psoriatic Arthritis Awareness: Good care dissemination project: 48.600 EUR.Övrigt:
Kontaktpersoner:
UCB Pharma AB, Anastasiia Dzhuromska, 0032476025754, anastasiia.dzhuromska@ucb.comIFPA - International Federation of Psoriasis Associations, Frida Dunger Johnsson, 0855610914, frida.dunger-johnsson@ifpa-pso.com