Intresseorganisationer
Projektets/aktivitetens namn:
hATTR Amyloidosis Patient Leadership Council Participant Agreement continued programTidplan/datum:
Startdatum: 2022-08-24Slutdatum: 2023-08-23
Läkemedelsföretag:
Alnylam Sweden AB (ansvarar för innehållet i denna text)Samarbetspartner:
FAMY NorrbottenProjektbeskrivning:
Patient Advocacy Leader’s Role. The goals of the PLC are to: • help identify unmet needs and shared goals within the hATTR Amyloidosis community. • discuss issues important to hATTR Amyloidosis In purpose to capture patient perspective of the disease.Ekonomi – Belopp i SEK:
8 400Ekonomi – Beskrivning:
Consult service fee 1400 SEK/hour (FMV) for patient organization input, in the field of hATTR.Övrigt:
Kontaktpersoner:
Alnylam Sweden AB, Maria Dahlin, 0720553880, mdahlin@alnylam.comFAMY Norrbotten, Susanne Berglund, 0911-197 64, famynorrbotten@outlook.com