Intresseorganisationer
Projektets/aktivitetens namn:
EIR NordicTidplan/datum:
Startdatum: 2024-12-04Slutdatum: 2025-12-31
Läkemedelsföretag:
Jazz Pharmaceuticals (ansvarar för innehållet i denna text)Samarbetspartner:
Svenska EpilepsiförbundetProjektbeskrivning:
Eir Nordic is a Nordic collaboration that brings together people and organisations providing care and support for people living with epilepsy and intellectual disability. Eir Nordic is an initiative started by 5 epilepsy patient associations across the Nordics and Jazz Pharmaceuticals. Our mission is to improve knowledge levels, share stories of good care and elevate successful, local initiatives to regional best practice. We do this by recognizing those who go above and beyond to care in two categories – individual Role models and systemic Change-makers. Submissions selected by the panel (Jazz not in the panel) will be invited to the Eir Nordic Day, an educational and best practice sharing day with dedicated networking activities. Anyone invested in the care of people living with epilepsy and intellectual disabilities is welcome to join. Read more at eirnordic.careEkonomi – Belopp i SEK:
1 000 000Ekonomi – Beskrivning:
Jazz Pharmaceuticals is funding the initiative. About half of the budget is allocated to consultancy work by external agencies for overall project management, administrative tasks as well as development and execution of the PR and communication plan. A substantial amount is attributed to renting the venue, technical equipment, project management as well as food and beverages. A marginal part is allocated to advertising. Travelling cost for speakers and speakers’ fees are uncommon and not provided to speakers among the partners. All partners have contributed actively to the planning and organizing of the event to the extent possible for the partner’s organizational size and capabilities. All partners have contributed with their expertise and time. There is a joint understanding between all partners that the expected outcomes will serve both partner, public and healthcare interests. None of the partners receive any funding for their time invested.Övrigt:
Epilepsy patient associations from other Nordic countries (Denmark, Norway and Finland) are also a part in EIR Nordic.Kontaktpersoner:
Jazz Pharmaceuticals, Christoffer Jensen, +4530460783, Christoffer.Jensen@jazzpharma.comSvenska Epilepsiförbundet, Tina Eliasson, 046760307110, tina.eliasson@epilepsi.se